Well, we have been in Chicago for 2 weeks now, and are entering our 3rd week.....and we got discharged today! I can't believe we are actually out of the hospital. Macy is purely amazing!
We had one of the worst nights last night, and I am actually shocked that they let us go today. Macy had the worst pains last night, and could not sleep at all. She was in pain until about 2 a.m. when she finally started sleeping. Then at the hospital, your morning starts at 6 a.m. whether you like it or not.
During the morning, the decision was made to take Macy off of the Heparin, so that was the last tube tying us to an IV pole. We also took a field trip to CT scan, and had one of those done. Macy does so good at following the directions, and staying still.
Most of our afternoon was spent waiting. It started to become ridiculous. There comes a time when you are at the hospital and you don't need to be there anymore. That was us today! Unfortunately our surgeon was in surgery at a different hospital. I had to turn into a barracuda, and start stalking the nurses and peds surgery staff in order to get discharged today. Macy, emotionally and mentally needed to leave so bad!
We go back tomorrow for more labs, and return Friday for a triple appointment (more labs, ultrasound, and physician visit). They continue to be shocked with Macy. Today our doctor's nurse practiconer came to see Macy for the first time. She said that Macy was doing better than 90% of the people that have surgery like this. We are so proud!
We still have a lot of healing to do outside the walls of the hospital. Macy is still struggling with her balance, and I notice a lot of stiffness in her body when she moves, particularly her feet. She also lost weight, and it is very easy to see in her face, wrists, and, legs. Macy has always been skinny, but she is SKINNY now. I don't want to push her belly, so we are taking it slow, and I have faith the weight will come back on and then some!
Please continue to pray for Macy's full recovery!
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