In Awe...

I am in total awe of this little girl. Never in my life could I have imagined to know someone with so much fight in her, yet to have it be my own daughter.

So this current state Macy is in is a tricky one. She has no more paralytic, but still gets Versed and Fentanyl for pain. They are using it to help keep her comfortable as well because she still has the vent in.  The vent goes in her mouth, and down her throat to help her breath. It has an umbilical clip around it at her mouth area and is taped to her face.

I can't even begin to imagine how uncomfortable she is. She is currently coming and going out of wake and sleep.  Around the tube she is creating a lot of mucus and spit that she is pointing at for us to suck out.  She cannot talk around the tube however she keeps trying.  To sit and tolerate a tube down her throat like this is amazing, especially for a child, and a child with a very bad gag reflex!

She is answering our questions about her needs with yes and no head nods.  Her belly is hurting her the most right now, so any movement makes her cringe.  I can only imagine how it feels since has that huge Mercedes incision.  Amongst the ventilator and the incision, she still has 3 IVs, her central line, and her art line. The catheter is still gone since she is producing enough urine in her own, which we cannot get her out of bed to do, so that is a whole other story. Her  mezenteric line (belly line into portal vein) is gone as well.  But good grief, to wake up with all this stuff in you and handle it so well is unbelievable!

Today we are praying to wean her vent setting and get her extubated. We are also praying to get her blood thinning back to the therapeutic level it was at before surgery. We need lots of pray for pain control for Macy as well! Also please pray for Jeremy as he is leaving today to go home. He needs to work, but more importantly we want him to be with McKenna on her last few days of school.  Pray for his emotions as he walks out the door, and for safe travels! We are hitting that road to recovery with pure determination and drive!