Let me start with the positives, I am thinking positively right now! Macy is extubated, and her labs look good. Another positive is that Dr. Superina came to see me today, and was so excited to show me the images from her venogram in the OR yesterday after surgery. Macy's blood flow to her liver is remarkable! He showed me befores and afters, I felt like crying. It is truly a miracle!
With all that said, we had an extremely rough day. Macy fought the breathing tube all morning, trying to physically pull it out multiple times. She was gagging, and even vomited around the tube. It was awful. After extubation she wasn't holding her oxygen levels well, and we noticed she had a ton of thick mucus that she couldn't cough up. Due to her wound on her abdomen, she is in too much pain to cough, even when we try to coach her through it. So they tried a machine that provided percussion breaths, a cough assist machine, and even cpap. We were just trying to see what might make her breath an little easier. Everything agitated her so bad, so they finally settled on a high flow nasal cannula, with a lot of oxygen.
We were on that all afternoon and evening with numbers all over the place, multiple desats, and she appeared to be struggling worse to breath around midnight after the nurse and I changed her bedding, she desaturated pretty low. We had to call the doctors in, and it was decided to place her on bipap. It is a huge mask that straps around your head and provides constant in and out flow for her. For once today, she is finally comfortable from a number standpoint, however I know she hates it.
I truly believe that with being intubated for 6 days, paralyzed for 5, and with a history of respiratory struggles, that she just needed a transition from the vent, and this bipap will do that for her.
Prayers are appreciated for positive respiratory changes in the next few days.
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