Day 10: Post Op #2

Today was full of ups and downs. We are having a very difficult time with pain. We still have a lot of pain at her incision, but today has been a lot of pain associated with trying to eat. This morning we tried liquids, and had some minor pain. For lunch and dinner we were allowed to let her try what sounded good. She had major pain following bites of food. She rated it at a 10 on the pain scale , and was brought to tears.  Tears from pain are not common from Macy, so we know it's bad.

First of all, I think we got too aggressive with her desire to eat food.  Also, I feel very strongly that it's  gas pains.  I think her stomach and bowels are just waking up, and are full of gas. It's awful to see her in so much pain though. I worry about weight, but she is still on TPN, however I feel she is skinnier already.

Now on the the ups for today......they weaned her overnight from 12 liters on high flow oxygen, to 3 liters of regular oxygen. Her chest X-ray looked pretty good, and her left lung appears to be open again finally. They moved us to the floor at about 5 pm tonight!  The ICU doctors and nurses were so sad to see Macy go.  They loved her! In other good news, our family of 4 was finally back together after 11 days! Seeing McKenna totally boosted Macy's spirits.

So please pray for her stomach to start accepting food, and stop hurting poor Macy. Also please pray for her physical strength.  She sat in a chair for about 1 hour today, and attempted to stand during physical therapy, but she can hardly stand, and cannot walk. Please pray for this! We are moving in the right direction, but it's a long recovery road!