I am sitting here next to Macy's bed, and McKenna is napping at my feet. I have both of my girls together with me, and it feels so good! I am having an emotional weekend. There are times I want to cry due to pure happiness and joy for all of the things Macy is fighting so hard to accomplish, and there are times when things seem so hard to handle, and I want to lose it as well. I just want to get out of here.....mainly for Macy's sake. She is so done with being poked and prodded, and staring at hospital walls.
Each day is better, and others looking in, like doctors, nurses, respiratory therapist, and physical therapists keep commenting about the amazing progress she has made just in a days time. It helps to remind me how far this little girl keeps going in such a short time. It's just hard when you watch and see the pain and struggle Macy is going throughout to accomplish all the goals she keeps setting for herself. She is the most determined young lady ever, and is out to prove to everyone how much she truly has inside that tiny little body.
On Thursday she sat up for the first time, she could not hold herself up. She was so dizzy. On Friday she sat in a chair. She did not sit long, and was in so much pain. On Saturday, she sat in a chair, and put her feet on the ground for the first time taking assisted steps. Today she walked to the end of the hallway pushing her own IV pole. It was slow, and she needed the pole support the whole time, but she did it!
We also took her down to the 12th floor family center to see the therapy dogs. She wanted to go down again this afternoon, so we did. She loved getting out of the room. We even propped her up in the window in our room so that she could see the Chicago view. She loved it!
We had to back off on her respiratory therapy a little today. She was getting a percussive type therapy through a medineb, and it was causing too much coughing and mucus. It actually made her vomit her lunch, which is the last thing we want to do. She is eating food with more substance, and it sounds like tomorrow might be her last day with TPN. It also might be her last day with the IV blood thinner, since they are changing us slowly to oral meds. If that is the case she will not need any more IVs. She also did so good today breathing wise, that they removed the oxygen to see how she would handle it, and we have been off since noon. We are praying she continues to tolerate it.
It looks like our CT scan will most likely be tomorrow. We are praying with all we have that we are IV free tomorrow, that we have our CT scan imaging done, and that Macy continues to eat more and more. I see a discharge to the Ronald McDonald house in our near future! Please pray for that!
I also need to give a huge thanks to Mamaw and Papaw VanVleet for coming this weekend and lifting all of our spirits! We all needed it! It has been a healing weekend in so many ways, and they have helped out so much with McKenna, allowing Macy time to take breaks and rest. Thanks again!
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