We had a very eventful day today. It was eventful in many good ways. We were very sad to see Grandma Kelli go home, because she has been with either McKenna or me and Macy for the last 12 days. She has been so amazingly helpful! We are so blessed to have her!
McKenna and I started our day with a walk in the city to the mall. This was the longest and farthest I had been away from the hospital since we got here, and only the 5th time to leave the doors. We enjoyed shopping at Claire's before heading back to the hospital.
Then our day got even more exciting when Mamaw and Papaw came for the weekend! The girls were beyond excited, and it was so nice to take our minds off of hospital things to enjoy family.
Macy is continuing to make process, but I had no idea when we started this journey just how difficult her recovery would be. Due to being paralyzed for 5 days, 2 surgeries, lots of pain and sedation drugs, and laying in bed following surgery, she had a very overwhelming weakness in her body. Macy is now able to roll from side to side in bed. She was able to sit for a short period of time unassisted in bed, and today she put her feet on the ground and walked for the first time...completely assisted though. It hurt her so bad, and broke my heart. To think that 12 days ago this little girl was running, walking, and jumping, and now can't even walk on her own is so devastating.
She is determined though! After going for our second "walk" today, she told me she did not want me to help her, and tried to let go. I held on with one hand, and she was working very hard to support herself. I got her in her bed, and then walked out of the room and lost it. I just can't imagine going through what she is going through...as a 10 year old. She amazes me with the fight and determination she has. She could very well say "I can't do this" or "this is too hard", but not once has a word like that come it of her mouth. She runs along the lines of , "watch me!"
She is down to 1 liter of oxygen, and we might be able to get rid of some of her meds tomorrow, mainly her heparin (blood thinner). They switched her over to an oral med called Coumadin. They wait to remove the heparin until you level of Coumadin is correct. They usually check after 3 days, and want the level to be 1.8. Well after 2 days I'd Coumadin, she was at 1.5, so here's hoping to get to 1.8 tomorrow! We also get a break from our TPN (IV nutrition) for 4 hours tomorrow. So we may be able to venture off the floor for a while and take a wheel chair ride downstairs to the family life center. On Sundays they have therapy dogs!
When our family left tonight to go back to the RMH, Macy started crying. She said she wanted to home. I think all of this emotion led her to tighten up, therefore causing incision pain that lasted for about 20 minutes. It was awful. We had to push her pain button twice for meds. I am praying that is all it was and not her stomach. I think we are in a good place food wise after spending most of the day eating broths and jello.
She is sleeping soundly now, let's pray for a quiet restful night!
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