Day 8: Post Op #2

It's so hard to say how things are truly going when you are in the ICU, and you live by the moment. You live by the numbers on the lab test, the numbers on the screen, and the current state your child is in. One moment your child seems "okay" and the next moment there is a medical team standing around your child's bed trying to make quick decisions, and your adrenaline is flowing so bad you are literally shaking. That was our yesterday, multiple times, and that is why I did not update until the middle of the night.

Sticking Macy on bipap has been hard for her, but I think it was a great choice. We are in a much better place today thanks to the bipap , medication changes, and her respiratory therapy she is getting. I honestly can't say if they will want to change her off of bipap or not tomorrow. I hope they do, but I know they want to be sure in order to avoid a setback.

Poor Macy keeps asking for water and apple juice. She had been very depressed about today, and I don't blame her. She always gets like this during hospital stays, it's just awful! We called in Child Life to help. She came by to check on her, and tried to just spend some time getting to know her, which was quite the task. First of all, Macy has a gigantic mask covering most of her face, and we can't just take it off because it is helping her breathing. Also, Macy seems to be somewhat confused. She is answering questions weird, as well as saying some weird things. They think it is all of the pain meds she has been on and is still on. We are trying to wean her though, and transition her into non-narcotic pain meds.

Also, today was McKennna's last day of kindergarten, so we now have a 1st grader and a 5th grader in our house! She has enjoyed the last two evenings with her daddy. They went on a date last night, and he took her for a celebration ice cream treat tonight.  They will come up on Friday night to spend the weekend with Macy and I. I can't wait to see my baby again!

Please pray for a good night, respiratory improvement, and a great day tomorrow!