It feels really good to be out of the hospital! We had a very rough night however. We just can't help Macy's ongoing stomach pains. She woke up around 1:00 am in pure pain, and was up until 5 a.m. It was awful. I talked with our nurse today, and she prescribed Macy an antacid, so we will see how it works tonight. She said it can be common for kids to need medicine like this following surgery. She also said that it could be a combination of that at surgery pain from having such major abdominal surgery. At this point, this is the biggest thing bothering Macy.
We headed back to the hospital for a lab draw today to check her Coumadin level. Coumadin is the medicine she is now taking as an anticoagulation medication. It thins her blood so that she doesn't develop clots. She will be on it for 6 months. In the beginning, we will do lab draws every few days, then weekly, and the every other week. This medication can be affected by diet, so we have a big list of foods we have to limit. Macy is also restricted for any contact sports/activities due to the ability to bleed easily. Therefore, no gymnastics for 6 months, and she may miss out on certain days in PE class. She is bummed!
I was a little worried about how she would handle the lab draw since she was so over the hospital and being poked and prodded. There was no need to worry...she walked right in, sat down, and stuck her arm out. She took it like a champ!
After lunch and a nap, we headed out for a little fresh air. Fortunately, the RMH had a wheelchair we could borrow for Macy. She is walking, and getting stronger, but she can only go very short distances. We walked down Michigan Ave., and over the bridge. It was so nice to get out! It was very interesting though, pushing my child in a wheel chair. I got to see a different perspective today. There were 4 types of people. 1. Makes eye contact, looks at you and your child, and smiles. 2. Looks at your child, and stares. Doesn't even realize you are watching them stare. 3. Notices you and you child, but looks away. 4. Doesn't even notice you or your child. Cuts you off crossing the street, backs up into your child, etc. It was very interesting. As a matter of fact, we went into the chocolate shop. A worker approached us and said, "would you like a sample?" She handed one to me, one to my mom, and one to McKenna, but completely overlooked Macy. It was awful!
So tomorrow is going to be a great day for one main reason....it will be the first day since May 16th that we won't be at the hospital! We are hoping to take the wheelchair out for another small adventure.
Please pray that we can get this stomach pain under control for Macy. I am hoping for a restful night for her, she needs it!
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