Wonderful News Wednesday!

As most of you know, we were completely devasted when we found out our one month old daughter not only had a heart defect, but would need a tracheostomy. A trach was something I had experience with when I was in elementary school. A little girl in my class had one. She was my one of my best friends! I helped her wheel around her suction machine and oxygen, I went to speech class with her and watched her learn how to make sound around her trach, and I shared all those best friend moments with her eventhough she couldn't even talk to me. In all honesty though, I knew that a trach was not normal. I beleived that along with a trach also came lots of visual abnormalities...not true, but this was true with my friend.

When Dr. Miyamoto came out to talk to Jeremy and I, photos and pamphelts in hand, I lost it! I refused to sign the consent papers.....I told them they must do something to fix it right then, and that I would not have a child with a trach. As the doctors walked away, I wanted to run after that.....I wanted to stop them...I wanted to shake them....I wanted to tell them that this would not happen in my family!!!! I couldn't move though....I was done. I couldn't even look at my husband anymore at that moment. I was lost in my own mind.



The first time I saw Macy after she received her trach, I couldn't even recognize her due to all the swelling. We spent our entire evening crying by her bed, wondering what the future held for our precious little girl. After making myself get out of bed the next morning, I headed to the hospital alone. I sat next to her bed and cried uncontrollably. The nurses left me alone. The other families left me alone. I needed that!





After mourning the unwanted changes in my life for a few days, I became bound and determined to get her home, get her trachea repaired, and get that trach out. That determination pushed Dr. Miyamoto to perform her tracheoplasty (repair) at the age of 14 months, weighing only about 11 pounds. That determination got Macy's trach removed at the age of 17 months. That determination has now gotten Macy's surgery date for the closing of her stoma (trach hole) set for July 6th!!!!






My child will now be able to swim, go tubing, play in a sandbox, take a "real" shower, and live her life without a bandaid on her neck! We are so excited for this to finally be a reality!!!! God Has Blessed Us So Much!!!!!!!