We toured a few museums...Ripley's Aquarium and Stars Cars Muesum. We headed into the Smoky Mountains on Saturday to see some old cabins and waterfalls. It was intriging and gorgeous!!!! We also have a blast at Ober Gatlinburg on Sunday! Not only did we visit great places, but we hit a breakfast house and some great restuarants for dinner :) It was a blast!!! I am already trying to plan another trip :)
In medical news, Macy had a check-up with Dr. Hainline. He is our metabolism doctor at Riley. He thought she looked great! He was happy with her weight gain, medicines, and diet. He said the main thing to focus on for the next year is how she adapts to kindergarten. He will be writing a letter to her school about her medical issues, that will also state that she requires a morning and afternoon snack (due to her ketotic hypoglycemia), and that she may need additional time at lunch to finish her food since her diet is a priority. He was definately in agreement with my plan to pack her lunch myself. We need to make sure she is eating the right foods and the right amounts. We were so happy with he told us that he is going to wait for more lab work until fall!!! Yay!!!!! Next Thursday we have our annual cardiology appointment. Jeremy will be taking off the day to go with us. We are having an EKG and ECHO. After those we will meet with Dr. Hubbard to discuss the results. We are anxious and nervous. We know another heart surgery is coming, we just don't know when. The older she gets, the more nervous I get for these appointments. One thing that is giving me some peace is that I watch Macy on a daily basis. I know her energy levels are super. I know that she continues to grow. I have never seen a cynosis episode. I pray her tests reflect how she appears on the outside!!! Please pray for great news on Thursday!!!
Have a wonderful weekend!!!! Hopefully we will be enjoying some warmer weather here in Indiana!!!
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