How's It Going?

 I am sure that many of you have been wondering how our first week at home has been going.  When we arrived home last week we were simply trying to get used to being at home, resting, and focusing on Macy getting stronger.

We had a couple of interesting days on Thursday and Friday.  Thursday she went to Riley for labs, our local community hospital twice getting some stool cultures, and headed to the pediatrician's office to check on her breathing.  Labs have been good, and her INR is right in range.  Woohoo!  Some of the stool cultures came back negative for some of the tests.  Yay!  I'm pretty sure we scared the NP on Thursday night (the whole package of Macy, fresh out of surgery could scare anyone), and she asked us to come back to see our doctor on Friday morning.  So we headed back, and he said she sounds really good in her lungs.  He checked her incisions, and said they look good as well.  The noises in her throat/nose area continue to decrease.  Last night she was the quietest she's been since before surgery.  However we are continuing on nebs every 6 hours until the sounds are completely gone.

We had a wonderful weekend spent at home together.  McKenna's softball game was canceled, which gave us more home time.  It was wonderful!  We stayed home on Easter Sunday.  It felt very different, but we tried to make the best of it.  The girls hunted eggs, they enjoyed looking through their baskets, and I made a wonderful Easter meal for us to enjoy together. Macy put on a dress for about 20 minutes.  It was long enough to get a family picture.  It was overall a very nice weekend!

Macy has been bound and determined to get back into the swing of life.  Through all of the pain and weakness, she went to school for 2 hours on Monday, and 3 hours today.  She is so amazing!  She is taking the elevator and has a rolling backpack, which both help a lot in regards to her moving around the huge school building.  She will go back tomorrow for 5 hours.  We are currently living day by day, and haven't made any decisions about Thursday yet.

We travel back to Chicago on Friday for 3 appointments.  She will have an ultrasound to check the flow of her Rex Shunt, blood work, and an appointment with The Man (Dr. Superina).   We are praying for continued good results.

We were supposed to have our Coag Check machine training on Saturday, but the nurse had to call and reschedule.  She is now coming tomorrow. We are so happy since it means no more trips to Riley every couple of days to check INR levels! 

I am back at work as well, and am so worn out.  Last night, I was looking at the clock at 8:15 p.m. thinking it would be really nice to crawl into bed!  We have a funny schedule at work this week due to the state standardized test for the older students, so it's been hard to get used to that, and only have a prep period for 30 minutes (especially with trying to play catch up). 

Please pray for continued strength,energy, and less pain for Macy.  Pray for her stomach to continue to heal.  I think we are moving in the right direction.  Please pray for great news in Chicago on Friday.