Macy finished out the school year with so many accomplishments. She had good grades and really improved in regards to her independence. We started the year having to micro-manage her homework, studying, and test schedule. By January, we just let her go. She struggled for about 2 weeks, and then pulled it together and finished very strong. She was a part of choir, robotics, student council, girl scouts, and drama club. She made the golf team and student council for next year already, and has some other activities in mind as well. We are so proud of her!!!
McKenna had a great school year as well! She is a social butterfly, and a pretty smart kiddo. She had straight As all year, and qualified for the cluster classroom next year. It is a classroom for high achieving students. She played travel soccer all year, basketball during the winter, and softball this spring. We are so proud of her!!!
Jeremy and I returned on June 1st from a 5 day stay in Las Vegas celebrating 15 years of marriage! We enjoyed the time away as a couple to focus on us, and we appreciate the help from my mom and dad for keeping the kids for us. I never worry when Mom has them! We did a lot of sight seeing! We visited The Hoover Dam, Route 66, The Grand Canyon, and Nelson Ghost Town. We stayed at New York, New York. It was such a nice hotel! We ate at some great restaurants and saw some fun shows. It was a blast!
We returned from our Vegas trip on a Friday, and headed to Chicago the next Monday morning to one of our favorite medical teams. Jeremy stayed home with the dogs, since he had been gone from work for 5 days the week before, so Mom was nice enough to head with me and the girls to Chicago. We always try to have a little fun while we are there, so we visited The Bean, Maggie Daley Park, and The Navy Pier. Our hospital visit required 3 appts. (lab, ultrasound, and office visit). Labs were all pretty good. Platelet count is holding strong, still low, but pretty much unchanged from a year ago. Ammonia level was a little elevated, but nothing to be concerned about. We don't know the official read of the ultrasound yet, but the images appeared to show good blood flow to the liver. We are looking forward to hearing some good news! It looks like we will head back in December. As of right now, it will be for labs, MR, and office visit. The MR is helpful because it shows the pressure and flow in the portal vein, which an ultrasound can't do.
We headed this week to Riley for some appts. with GI and Endocrinology. GI reviewed the labs she wanted us to do while we were in Chicago, and we touched base about our appt. with Dr. Superina's office since they both follow Macy's liver. She said from a celiac standpoint we are doing a fantastic job! Her celiac blood work was great!!! Macy does so much self-monitoring, and does a really great job at it. Her only concern is that Macy is not gaining weight faster. She only weighs about 57 lbs. I don't even know what to say anymore about her weight. We've been battling this since the day she was born! She suggested to Macy to try to get 300 extra calories in her diet each day. We also started her on a new med (one we were on a couple of years ago) that stimulates her appetite. We stopped it previously once we found out she had Celiac Disease.
Endo went good as well. She is always so excited to see Macy! Endo follows her growth in height. Macy is growing adequately and is up to 4'4". Considering I am not quite 4'11", she is definitely catching me. We have no changes with her daily injections, and will continue as is. She ran some labs to check her hormone levels and thyroid (which is often off a little). We also headed to radiology for a bone-age x-ray. The labs came back good. For the first time ever, her thyroid is in normal range, and her IFG-1 growth factor is in normal range as well. Yay! Her bone age last year at age 11 1/2 was that of a child age 7 years, 8 months. This year, at 12 1/2 years old, her bone age is 10 years old. So it is still over 2 years delayed which means she has more growth! So overall great news!
The rest of our summer is sure to be full with All-Star softball for McKenna and Jeremy (he's coaching), 2 weeks of golf camp for Macy, lake visits, sleeping in, and lots of family time! McKenna is also starting her orthodontist journey. We had her first consultation, and they are starting her with expander retainers on both the top and bottom to make more room her mouth. She is just happy that she might be able to avoid getting any permanent teeth pulled like me and Macy.
Thanks for checking in on us and always keeping our family, especially Macy, in your prayers!
Here's a few pics from our AMAZING trip to Vegas!
No comments:
Post a Comment