Swinging into Spring

Spring is here, and we have been enjoying some time outside.  We are hoping Spring doesn't go away!  We are loving this weather!

Softball is up and running, and McKenna has practice twice a week.  Games start in a few weeks, and she is really enjoying her softball season again.  Jeremy is coaching again, and has two other really good coaches helping with the team this year.  We are hoping for a great season!  McKenna was very excited to have me along on a field trip this week at school as well.  It made me so happy to spend the day with her!  We had a great time at the zoo!

Macy finally started back at horseback riding last week, and we are hoping to start her golf season soon as well.  She will be so happy to be back in the swing of things, even if it's for a short time!

We just finished our two week long spring break, and we spent one of those weeks in Florida.  We had a blast!  We visited a Big Cat Habitat that rescue many different types of big cats.  Our tour even included seeing a Liger.  They had a couple of really cool shows as well!  We spent multiple days at the beach with our feet in the sand, hands building sand castles, and jumping the waves.  Any free time we had, the girls spent swimming in my parents' pool.  The girls had a lot of quality time with their grandma and grandpa, as well as their great-grandpa.  We got to go with Great-Grandpa Wayne to his neighborhood for coffee and donuts.  It was truly a highlight of my trip!  I can't even begin to describe the feeling I get watching my grandpa play with the girls.  He doesn't just sit and watch them play, he literally plays with them.  He swims with them in the pool, pretending he is a shark.  He plays with them in the office pretending he is coming to their bank trying to get a loan.  He acts silly, and they laugh and laugh.  They will forever hold those moments dear!

We went to a few dinners at places that had great gluten free menus, and my parents did an amazing job at cooking gluten free all week.  Also, thanks to my parents, Jeremy and I got a date night.  We headed out to a restaurant that sits right on the shore.  It was wonderful!  I miss them already!!!! They encompass everything that parents and grandparents should be!  We are very blessed!

We've had some medical news since my last post.  We saw ENT in February.  They agreed that her tonsils are huge.  However, they were hesitant to remove her tonsils if it was not necessary due to it being a tough surgery and ANOTHER surgery to add to her list.  They requested that we have a sleep study.  When we finally got the okay from insurance, I spoke with the sleep center.  They informed me that they had an opening, due to a cancellation, for that night.  It was spring break for us, and it just made sense.  So Macy and I headed last minute to the sleep center, and spent one crazy, sleepless night staring at the walls.  Apparently she slept though because they called last week, and she is having Obstructive Sleep Apnea.  Therefore we go back to ENT this week, and we have a tentative surgery scheduled for May 8th.  They told me the normal recovery, out of school, is 2 weeks.  What?!?!?!  I freaked.  She can't miss two weeks of school!!!!  They said they have some kids return to school after one week, but I could make that call.  Oh my!

Macy's platelet count has dropped a little bit again.  If you recall, this is due to blood backing up into her spleen due to portal blood flow.  Like I said in my last post, we go back to Chicago in early June for her venogram.  We will decide if the revision surgery will be needed after those results.

On a very positive note, we had two fantastic appointments with two of our important specialists.  We saw GI a couple of weeks ago, and Macy's labs showed great celiac results (the diet is working), and we have been able to stop 3 meds!!!  Woohoo!  We also had a recent visit with cardiology, and Macy's heart looks great!  When I say great, I don't mean like yours or mine, but great for Macy.  He still thinks that we have many years until our next open heart surgery.  Yay!  We really needed to hear that!  He did say that we will be doing a 24 hour holster monitor next year since she hasn't had one since kindergarten.

We are getting very excited for the weather to change for good to springtime weather, and the girls and I are greatly looking forward to summer break!  Only a few weeks left of 1st grade and 5th grade.  I still can't believe how fast this school year has gone by!  Thanks for checking in on us!!!