I can across a great blog event today, and I decided to join in. This event was created for heart families to come together to support eachother, spread awareness of congenital heart defects, and learn from eachother. You can visit the blog link here!
I decided the best way for me to share Macy's story would be to show you the video I created back in 2007.
I quick synopsis: My pregnancy was very normal. I had two ultrasounds at 19 weeks and 28 weeks, everything appeared normal. At 31 weeks, things really took a drastic turn. I started swelling, and ended up on bed rest at the hospital. Macy was born at 34 weeks. She weighed only 3 lbs, 11 oz. and was 15 1/4 inches long. The very next day, my hospital room was flooded with nurses, doctors, and pamphlets. They were all explaining that our beautiful baby girl had a heard defect.
Macy was born on January 28, 2006, and was diagnosed on January 29th with Tetrology of Fallot. In August 2006, Macy recieved a BT shunt as a temporary repair, and had her full repair in September 2007. Macy's battles didn't stop with a heart defect diagnosis though. Macy has been diagnosed with subglottic stenosis and tracheal malasia (both airway defects), Abernethy Malformation (an extremely rare liver malformation), ketotic hypoglycemia (blood sugar issues), asthma, and an unknown muscle disease. Macy has been under general anesthesia 19 times, and will face more surgeries in the future.
My little miracle is now 5 1/2 years old, and just started Kindergarten last week. She is an amazing little girl, with an amazing story! We are so proud at how much Macy has accomplished, and look forward to all the amazing things she will do in the future!!!!
Here is her video: Click HERE!
Thanks for taking the time to join my blog linking event! Sounds like you have been on quite a journey with Macy. Thank you for sharing your story!
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